being mortal documentary

Dr. LAKSHMI NAYAK: I think we need to talk about what’s been going on for the last few days, the fact that you didn’t respond to the spinal taps. Dr. KATHY SELVAGGI: What do you think about that? We’ve been lucky. Dr. LAKSHMI NAYAK: Like your eyes. He entered hospice four months, as it would turn out, before he died. This is it, yeah. And unfortunately, about a year after the transplant, he showed signs that his disease was coming back. But eventually, paralysis set in, and then our options became chemotherapy. Dr. ATUL GAWANDE: I knew— I knew it was not going to— I mean, I— in other words, the reason I regret it is because I knew it was a complete lie. And if we don’t ask and if we don’t have these discussions, we don’t know. MARY BERNARDO BROOKS: At this point, it’s just making sure he’s as comfortable as he can be, you know, and that’s the most important thing. show_ids:"", August 19, 2014 Uncategorized Greg Sullivan. MARY BERNARDO BROOKS: Want me to just move all these canvas ones? This is the beginning of the end. The PBS on-demand streaming service, WPBS Passport, is now available in Canada! Dr. ATUL GAWANDE: Take me back to when she’s pregnant, she’s doing great, 39 weeks, your due date is coming. Major funding for FRONTLINE is provided by the John D. and Catherine T. MacArthur Foundation and the Ford Foundation. Dr. KATHY SELVAGGI: Our goal is, for whatever time is left, is to make it the best quality that we can. It took me 15 years to collect this. So when the result came, we were in a shock. My thought again is I’m not afraid to die, but I’m afraid of all the suffering that goes beforehand. Being Mortal: Medicine and What Matters in the End. She basically just told us to get ready. Dr. LAKSHMI NAYAK: Yes and no. My mother and my sister were having a conversation. Can I check a few things? And I’m, like, “I’ve been doing that for two-and-a-half years.” I’m— I’m at the end of my ropes as far as that goes. What did— what did we miss out on? Dr. How do you know if they’re coming towards the end versus changing the therapy again? BILL BROOKS: There has to be a third option. When I started out in my training in surgery, you discover that all the stuff you learned about in the books in medical school is really just a tiny little bit of what it means to be good at doing our jobs. Dr. ATUL GAWANDE: You know, people have priorities besides just living longer. He’s one of those few people in whom, you know, if there’s something that you could try, it’s worth trying rather than just waiting. Right now, in this state, more treatment would hurt you more than help you. FRONTLINE is a registered trademark of WGBH Educational Foundation. Dr. ATUL GAWANDE: [voice-over] It’s impressive for a patient — and a family — to be so clear about their priorities, like Jeff Shields was. Find us on the PBS Video App where there are more than 250 FRONTLINE documentaries available for you to watch any time:https://to.pbs.org/FLVideoApp, Subscribe on YouTube: http://bit.ly/1BycsJW, Instagram: https://www.instagram.com/frontlinepbs MARY BERNARDO BROOKS, Bill’s Wife: How do they look? PAUL BABINEAU: Is there a time, you think, a timeline, or—. We’ve got great jobs. Dr. ATUL GAWANDE: [voice-over] Aymen Elfiky was one of those doctors. It was holding out a hope that was not a realistic hope in order to get him to take the chemotherapy. Local panel of experts to follow film. But they might say, “No, it’s not under control.” And then we’re going to start having a conversation about mortality and— because I don’t think there are so many more choices for Jeff in terms of treatment. What are you willing to sacrifice and what are you not willing to sacrifice? hide_for_id:"66891" I’ve thought often about what did that cost us. I don’t want to linger. I’ve always loved Atul Gawande’s writing—with his compassion and common sense, he’s the kind of doctor you pray to get at the hospital—and in Being Mortal… Dr. ATUL GAWANDE: It’s always a hard thing, right? We often are finishing each other’s sentences. And I tried to crank the oxygen up. The documentary … I hate to cry! In fact, talking with anyone near the end of life about their decisions is so difficult that there are actually physicians who specialize in the process. padding_top:"", Dr. ATUL GAWANDE: [on camera] Forget Disneyworld. link:"", At this point, I knew that he wasn’t going to live for too long without anything. Being Mortal has an introduction, eight chapters, and an epilogue. He explores his own humble journey with the realization … He met my mom and married her, and they moved to Athens, Ohio, to set up their medical practices and raise a family. Dr. LAKSHMI NAYAK: That drug— we actually have a trial with that drug. But anyway, my guess is that it just depends. My father answered these questions. I’ve fought as best I can. “Aging and dying — you can’t fix those,” … And you know, I had hoped to have another 10 or 15 years, but you don’t always get what you want. [Mary weeps]. And he made it very clear to me that if we thought some therapy might be helpful, might prolong his life with reasonable quality of life, he was happy to go for it. action:"bsa_pro_ajax_load_ad_space", if_empty:"", I can’t take any more bad news. Dr. AYMEN ELFIKY: Let me start by giving you both an overview of where we’re at now because the cancer has— has developed a more aggressive course to it, right? And that was not— that was not a good outcome for— for the final— final months. And so, you know, of course, you have your pity party. You know, as your— as your world comes closer and smaller and smaller, it becomes bigger and bigger. But the medications and the things that we’re requiring— it’s just not going to happen. 1 VIDEO Explores relationships between doctors and their patients nearing end of life. I spoke to Gawande the day his documentary film about end of life was to premiere on PBS's Frontline. I’m gasping for air, and I can’t— can’t do this.”. [voice-over] I remember sitting in a chair, reading the newspaper, light coming in the window. Dr. ATUL GAWANDE: Accepting death comes with incredibly complex emotions. You'll receive access to exclusive information and early alerts about our documentaries and investigations. Dr. LAKSHMI NAYAK: And then best case scenario, too. That connection to people going back that many years makes you feel like you’re connected to that many years going forward, as well. There’s a small area, a new spot. Dr. ATUL GAWANDE: [voice-over] Palliative care doctors like Kathy Selvaggi are different. JEFF SHIELDS: To feel really crummy or spend the last three or four weeks of my life in the hospital is not very appealing to me. Doctors, uncomfortable discussing patients anxieties about death, fall back on false hopes and treatments that are actually shortening lives in… OK? And? [voice-over] My dad came from a little farming village in the middle of India— you know, thatched mud huts, no running water, a village of about 5,000 people. This Frontline documentary follows surgeon and award-winning author Atul Gawande, MD, author of the bestselling book by the same name. Eyes wide open— what I was looking into your eyes was not the way your pupils reacted was— but to see what the pressure might be. Yes, I’m going to take her for Christmas. Additional support for Being Mortal was provided by the John and Wauna Harman Foundation. Dr. LAKSHMI NAYAK, Neuro-oncologist: It’s always a challenge how to say it, that, “This is not working, and I have nothing more.” I try to deliver the bad news in pieces over a period of time. He wanted to be cremated in the traditional Indian way, and he wanted his ashes spread on the Ganges River. And it’s hard. Medicine often offers a deal— We will sacrifice your time now for the sake of possible time later. RICH MONOPOLI: The collapsed lung would not allow for a C-section. I’m a surgeon and I’m a writer. Real Time with Bill Maher, January 16, 2015 Real Time with Bill Maher: Being Mortal with Dr. Atul Gawande . One of the goals was to try and get her home with hospice services. Dr. JEFF SHIELDS: Then I need you to help me bring my feet up. Earlier this month, PBS Frontline’s Being Mortal premiered. Dr. AYMAN ELFIKY: That I wish I could do better. ATUL GAWANDE: [voice-over] In the last three months of her life, almost nothing we’d done — the radiation, the chemotherapy — had likely done anything except make her worse. JEFF SHIELDS: I don’t want to go back in the hospital. The oncologist was being totally human, and was talking to my dad the way that I had been talking to my patients for 10 years. (Play DVD) • Immediately after the documentary, a brief silent pause, then: Please take a few minutes to turn to the person next to you and share some thoughts and feelings about a moment or person that struck you in the documentary… Learn More. She’s enthusiastic. BILL BROOKS: If I die tomorrow, she’s not going to know how to dispose of this properly, to get the most bang for her buck. Can you do that? So you’re looking, you’re grasping for a straw that says, “Well, there’s something here that’s going to be beneficial.”. You want it to be as comfortable and happy a place for him as it can be. SANDRA RULAND: When we talked about hospice, I was reading Mary’s body language that was sort of saying to me, “Don’t go there.” But given all the things that were going wrong, I felt like we had to do that. If Dr. Nayak had said, “Let’s talk about worst case scenarios,” then I would have said, “and we’ll talk about best case scenarios.”, Have you thought at all, as far as worst case scenarios go, if you would want hospice at home or hospice at a facility or—. And he was a person mostly during that time. BILL BROOKS: My thought — and Mary’s heard me say it a lot — is I want to see the next one to kind of see if it’s showing anything or not before I start to get worried or get too hopeful. We’re trying to stabilize the situation and try to become a little— spend a little bit of time as a family. Her technique is as much about listening as it is about talking. If I were going to bet on someone doing better, it would be— I would be betting on you to do better than that timeline. OK. Let me just tell you this. Dr. ATUL GAWANDE: [voice-over] Bill was only able to get one dose of the experimental drug because he was getting sicker. Dr. ATUL GAWANDE: Bill died two days later. The pressure came down. And one of the nice things about being at the farm is that you realize everything dies. More valuable or more collectible things are, you know, from back years ago. Millions, literally millions of families have brought the ashes of somebody in their family who’s died to the Ganges. What I’m worried about is, could we be coming to a place where it’s— it’s actually killing you and we don’t have the opportunity to really talk with the children and the—, JEFF SHIELDS: You mean where I am in what I consider in hospice — in other words, end stage —, JEFF SHIELDS: —and we don’t have a— I’m going to live for four weeks, and we’re thinking, “Oh, maybe there are three months.”. Am I not? Dr. AYMAN ELFIKY: Right. And I’m worried that the disease will be growing. All right. Still, Norma had little time to say her good-byes. He died just hours afterwards. Dr. LAKSHMI NAYAK: Have you thought about anything after the MRI? He called me up, and as we’re piecing it together over the phone, we’re kind of realizing this is right in the middle of the spinal cord. The hospice people will know it. Dr. ATUL GAWANDE: Are you at all worried that he would just have toxicity from the drug without benefit? [on camera] I work at the Brigham & Women’s Hospital and Dana Farber Cancer Institute in Boston. His symptoms started getting more aggressive. I felt he had brought us there and connected himself to all that was important to him. Yeah. delay:"", You have a young woman with a brand-new baby. Was there anything else I could have done? $.post("https://www.wpbstv.org/wp-admin/admin-ajax.php", { Dr. ATUL GAWANDE: [voice-over] Dr. Selvaggi works with doctors throughout the hospital to help with their hardest patient conversations. We should have started earlier with the effort to have quality time together. And they’re always looking for a way to push the disease into remission than they are in talking about the longer-term picture of mortality. Jon and Jo Ann Hagler on behalf of the Jon L. Hagler Foundation. How do you talk about death with a dying loved one? We’ve got to find the right medicine to get me better so I can take my trips. I don’t think any of us were. It may have shortened her life. Hopefully, I’m your last bad news for the day. So whether he— at least he felt that he could try. Being Mortal has won awards, appeared on lists of best books, and been featured in a documentary. KATHY SELVAGGI, M.D., Palliative Care Specialist: First of all, I think it’s important that you ask what their understanding is of their disease. She was young. Dr. LAKSHMI NAYAK: I’m worried that your disease is progressing quickly. The ultimate goal, after all, is not a good death but a good life — to the very end. But I think it’s also important to have a sense because if there are things that you want to say or do or people that you want to see, it helps you to find that time a little better. [voice-over] It made me want to explore what other doctors were doing in these extremely difficult circumstances. He went to medical school in India. And she said, “I can’t do this. And what we’ll do is, we’ll— we’ll keep you here and we’ll take care of you here. You want to be part of that 15 percent that survives more than five years. We have an appointment that I hope will result in them saying that the disease is lessened. I then pushed. I just want to make sure he’s OK. Are you OK? PBS Frontline Documentary Film: Being Mortal. ROB SOIFFER: Well, I don’t think we ever know. My dad made his wishes for what his life would be like, to the very end, very clear to us, including for what should happen even after the very end. Since then, my mind has been in rapid decline. Being Mortal FRONTLINE follows renowned New Yorker writer and Boston surgeon Atul Gawande as he explores the relationships doctors have with patients who are nearing the end of life. But it— it was just— it was an impossible situation, impossible summer. Who knows, you could be playing tennis by the end of the summer.” I mean, that was crazy! What do we do to make the best of that time, without giving up on the options that you have?” That was a conversation I wasn’t ready to have. I actually called Mary. It’ll just mean that he’ll linger longer. And then we realized he wasn’t breathing. Thousand Islands Bridge Authority and Boldt Castle Facilities. Dr. ATUL GAWANDE: When I came on the scene was when she got diagnosed with a second cancer. ATUL GAWANDE, M.D., Author, Being Mortal: I’ve been a surgeon for more than a decade now. And yet I didn’t feel I could say that to you all. So how many of your patients will you cure or help them have a better life? Bill brought up this particular drug, but it is experimental. I’m right here, sweetie. When I first learned of Jeff Shields, he had already gone through three years of treatment for a rare form of lymphoma. SUSHILA GAWANDE, Atul’s Mother: He had pain in his shoulder, and he thought that either playing too much tennis or just muscle. He’s an oncologist who, like me, grapples with reaching good decisions with his patients about dying. I hadn’t known he felt that way. RICH MONOPOLI: I don’t think we were. Support for FRONTLINE’s YouTube series provided by the John S. and James L. Knight Foundation. Over 500 hosts partnered with local community organizations to hold 1,430 screenings of the PBS FRONTLINE film Being Mortal. She was planned for the experimental therapy the following Monday. }); In some ways, I think the medicine is the easy part. JEFF SHIELDS: Is it too hard? 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